Monday, February 01, 2010

I do not think it is Asperger's....

Tomorrow is visit 3 with the Psychologist. First visit, the Dr. met with Dad and I, second visit the Dr. met with SR. WE have filled out all sorts of paperwork test fill in the dot thingys, one of those was for ADHD, one for Giliam Asperger's syndrome. We were not the only people to fill these out, school filled them out as well. (I am unhappy about that). Tomorrow is visit number 3, which I am guessing is diagnosis day. I am pretty sure I know what this Dr. will say, and I am prepared to go to a different Dr. if that is the case. 3 years ago, I would have said possibly Asperger's. Now, not so much. He does not fit the Asperger's criteria as we see it. He also does not have PPD. although these are the 2 most HOT, and common misdiagnosis for children like SR. Why a diagnosis is neccesary I have no freaking clue. I originally went to the pyschologist to help us figure out how to help us, SR, and the teachers with the "overexcitabilities, and asynchratic issues".

Frankly, I have been reading and consuming information like an insane person, printing things off for the Dr. (which I am sure he will love BTW). However all information is pointing to Highly gifted, with normal problems, and behaviors that come with that. Mostly reading about how socially asynchronous behaviors are NORMAL for these kiddos. For the past month, SR has been fine in classes. No visits to the office, no behaviors....appears all is ok. I have begged him to to his teachers when he feels "OVER sensitive" (These are periods that normally come after 1pm, in which if he tries to concentrate on anything, he can hear EVERY sound, feel every seam, smell every dorito eaten at lunch, he hates the smell of doritos) I am not sure what to attribute to this. I did buy SR some books on controlling his frustration, a survival guide for gifted kids, and a book on perfectionism. He told me the frustration book, really didn't help him, because he is not frustrated, he is oversensitive. All books included some coping mechanisms, for him to deal with his day. I keep reading these kids HEAR louder, feel deeply, and are hyper emotional. Just google High Ability Learner, and boom look at the emotional stuff and whammo, I have a textbook case. Also for those people who think I am trying to make excuses, I am not. I am just trying to teach him how to deal with the feelings. He knows what they are, and can feel them coming. I have asked him to tell his teacher. Normally he needs to clear his head for about 10 minutes, by reading something, or working on a puzzle problem, and then he can return. He is embarrassed that he is so sensory enhanced, and emotional.

The problem, an IQ of 160 is pretty rare, 1, in 30,000. So who knows what "normal" is for these kiddos.

The social stuff. Currently we have SR in the rock band, hoping this will help him deal with others, learning an instrument, working as a team. As you can imagine this is a double edged sword. The last lesson, all 3 girls (including mine) were wound, and were not cocentrating, and were jazzy. They were not concentrating, and the music was no longer music, it was noise. This posed a problem for SR, because he was there to play his intrument. The noise became an issue. (speaking of which I need to find him headphones this week. ) He collected himself enough to play. I will say this, he was right, the girls were annoying, and the sounds they were making were awful.

This past weekend, I let the kids invite a friend out to lunch, and they got to pick an activity. They picked ice skating. I have been talking to SR about how to generate conversations with others. He has trouble finding common ground with his peers. He thinks his peers interests are farcicle, things like Transformers, Star Wars, collections of toys that are not useful make no sense to him. This is a problem, because most kids his age have "a thing". SR's thing is science and math. This makes it difficult for him to relate to boys his age. So I got to spend the day watching SR interact with a friend from school. It went ok, until SR wanted to talk about squaring numbers, and negative numbers, microphages, and t-cells. They did talk aout videogames, and that seemed to go ok.

Wish us luck at the Dr. tomorrow, my gut is not good on this, I do not think we are with the right Doc. I need someone who has seen this before, and this Dr. seems pretty green with this stuff....

7 comments:

Mike D. said...

thoughts and prayers are coming your way. i wish i had answers for you...

LL said...

Trust your gut on the doctor. I have learned my lesson on regular physicians and go with those who trust my instinct as a mom because I am the one who knows my children the best.

Advocate for that young man, find someone you both can work with, and make NO apologies for doing what is best for him.

PS--yes, having the school/teachers fill out the bubble questionnaires is very scary. Even worse when you took your child to the therapist because that teacher "knows" your child has ADHD. But in the end, if you get a good doc, he or she will not only help your child, he or she will help you cope with "helpful" teachers who don't like rambunctious children. And yes, I know SR is more than rambunctious. I only mean that the doc can give you information to help counteract the ADHD-drug-them-all mentality. ;-)

*hugs*

ptg said...

I'm lucky that there were no head doctors in school when I was a boy. My experience was almost exactly parallel to SR's, except that I was simply labeled a 'bad boy' and punished often. I learned to avoid punishment, a skill that I think served me better than any diagnosis or treatment.

A 160 plus IQ is a problem only in an 'normalizing' environment in which the nail that sticks out gets pounded down. To think this happens in a system that pays lip service to diversity confirms my belief that public education is at best hypocritical.

Wife of a Sailor said...

I don't have kids, but all I can say is... keep trusting your gut.

Tammi said...

Good luck today. I'm praying for all 3 of you.

Sorry about the uber short call yesterday. It was just insane being my first day back.

I'm sorry.......

BellsforStacy said...

Bravo to you for fighting for your kid. I have no helpful advice I just really distrust teachers / therapists / doctors who constantly want to medicate kids so that teachers can have an easier job.

Good luck, go with your gut, and I hope all goes well!

Guard Wife said...

Okay. I really need to read every day. If I slack, things happen that I should call you about and then I'm late. You know to call me if you need to; otherwise, I'll be phone stalking you come tomorrow or Thursday.