Monday, September 20, 2010

No I am not DEAD

I just pretend to be on my blog.

Last time I blogged here, school was just letting out. Summer came and went, the kids keep growing. PN's feet are exponentially bigger......

and then there is the continuing saga of SR.

We are currently looking at the real possibility of food allergies, or sensativities. One of those being gluten, which I have successfully removed from his diet. Something I had thought about 6 times, and resisted because of the overwhelming anxiety re: oh my lands gluten is in EVERYTHING. He has been gluten free for around 2 weeks with some improvement noted in his keratosis pilaris, behaviors, and sleeping habits. I also added Nordic naturals Omega 3-6-9, with noted improvement.

Tomorrow we head to the GP to request parasite tests for stools, magnesuim levels, b levels, a referral to an immunologist, and and endocrinologist. I get to be "that nutty Mom @ the Dr. tomorrow". We are also actively at a psychologists office, who is trying to determine where on the spectrum, and if SR is on the spectrum.

This is all a painful, and tedious process. SR is frustrated beyond belief, being profoundly gifted comes with its own issues, it is not all rainbows and unicorns, as some would think.

I also realize SR problems are not life threatening at this time, and there are many families that would wish for our current situation.

Wish me luck and say a prayer tomorrow, that I am heard, and I am able to advocate for my son. I want him to enjoy being SR.

7 comments:

Anonymous said...

I've been there, good luck.

AC

vw bug said...

Good luck!

farmwifetwo said...

We did casien first - removing milk is much simpler - also b/c if he's gluten intolerant it should be weaned out (some have had reactions if it vanishes too quickly) and actual results will show in about 3mths. Gluten we did do for a year - nada.

Casien... 2 days later... buy buy diahhrea, nightmares and terrors, some calming... but the head banging didn't come under control until speech became "normal" and we went on Risperdal from age 6 to 8. Appears my kid is also severely claustrophobic... explain that one to a teacher... thank goodness for wonderful OT's.

Now just a few weeks shy of 11.. I have a "normal" preteen (YIKES!!!) with a dx of mild non-verbal learning disorder, disgustingly average at school, social still needs work but getting there, AKA why did I stress myself out all those years... :)

Saying that, the one going on 9, on the severe end of the spectrum, who too is holding his own academically and the verbal apraxia's coming along daily... Diet change... NADA... No extra gains what so ever, no health changes, nothing.

We did do cod liver oil for the elder for behaviour... that stuff stinks and we buried it in juice etc... it helped some. We are still giving younger bro 3mg of Melatonin to help shut down the sensory/stim at bedtime.

http://www.goodreads.com/book/show/319420.Special_Diets_for_Special_Kids_Two

I gave this book away (had book 1) but it was a good reference for recipes.

Tina said...

wishing you luck and prayers. you are the best advocate for your son, you are his mother.

defendUSA said...

AWTM-
We're glad you are still out there. And I hope it all went well. It can be draining and emotional to be sure.

Anonymous said...

Hi! My name is Stephanie Fritsch. I am working on an upcoming event for Veteran's Day. I was hoping you could help get the word out once we finalize the details. Is there an email address where I can reach you more directly? Mine is smfritsch@carolina.rr.com. Thanks!

The Paid to Click Experiment said...

Hello!!

I found your blog while searching for other Army wives like myself. I am currently stationed in Germany and just created my first blog yesterday - I would love if you could become a follower.

With all of this free time, I have been looking for different ways online to keep busy and make some extra money for our family, too.

My blog will hopefully become a testimonial of my experience. While it has only been 24 hours and I've only made $4.00, I will remain hopeful that these funds will add up quickly while my soldier is in Afghanistan.

Have a wonderful weekend!!

-JJ

http://thepaidtoclickexperiment.blogspot.com/